Patient Oriented Research
We are committed to upholding the SPOR guiding principles of inclusiveness, support, mutual respect and co-building, and recognize that patient engagement not only includes those receiving care, but also their families, support network and members of the public.
In addition to the resources outlined below, there are regional centres dedicated to supporting patient-oriented research – you can learn more about these units here.
The SPOR Patient Engagement Framework is designed to establish key concepts, principles and areas for patient engagement to be adopted by all SPOR partners.
The BC SUPPORT (SUpport for People and Patient-Oriented Research and Trials) Unit is part of a national program to help health care research be more relevant and meaningful to patients, so that they get the best possible health care.
REACH BC makes it easier for you to connect with potential research participants and patient partners. It gives you access to a broad population across BC—in urban and rural settings, across multiple health authorities. REACH BC matches you with interested volunteers, who you can review and select as participants in your study.
You can also use REACH BC to find patient partners!
New to REACH BC? You can watch the full recording of the webinar on our YouTube channel.
Training is an important part of co-creating research with community and patients, as it prepares all team members with the skills to engage in research meaningfully. This training manual is shared by the RE-IMAGYN BC (Relationship and gender EquIty Measurement Among Gender-inclusive Young women and Non-binary youth in British-Columbia) Study. The RE-IMAGYN BC study aims to better understand and measure relationship equity among youth in BC. This manual was created to train Youth Research Associates (YRAs) in qualitative research methods to meaningfully participate in research with the RE-IMAGYN study. The role of YRA is a type of “peer research associate”– a researcher who uses their expertise from their lived/living experience as part of the researched community to guide and contribute to research. Throughout this training manual, you will find details of the RE-IMAGYN BC YRA training (including agendas, slides, and pre-work) and reflections on the process and design of the training from the team. You are invited to use this training manual to inform and shape your own training.