BC Perinatal Data Registry

The Women’s Health Research Institute (WHRI) is pleased to announce the launch of a pilot project in partnership with Perinatal Services BC (PSBC), allowing WHRI members to access data from the BC Perinatal Data Registry (BCPDR) through a dedicated in-house Data Analyst at the WHRI. It is our intention that by providing direct access through the WHRI, the data request process will be more streamlined and efficient, thereby increasing the number of researchers who are able to gain access to BCPDR data.

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The BCPDR contains maternal, fetal, and neonatal health information for an estimated 99% of all deliveries and births that occur in British Columbia. From the year 2000, the BCPDR has captured approximately 45,000 births per year, including data on maternal postpartum readmissions up to 42 days post-delivery and baby transfers and readmissions up to 28 days after birth. Access to person specific (record level) de-identified data from the BCPDR can be provided for addressing a specific set of research questions. Aggregate data without personal information that are expressed in summary form (i.e. total births, average age of mother at delivery, total cesarean sections, etc.) are also available to assist with research planning.

The WHRI is now able to accept, review, and approve data access requests, as well as providing the data, for WHRI members. We are able to offer co-ordination of the entire data access request process, including guidance, support, and advice to WHRI members who are preparing an application for BCPDR data.

You are able to apply for research data from the BCPDR facilitated by the WHRI if:

  • You are a WHRI member, or under the supervision of WHRI member
  • You require access to an unlinked set of data from the BCPDR. You cannot link WHRI BCPDR data with any other data.
  • Your project has been approved by a Research Ethics Board.
  • You have contacted the WHRI Data Analyst prior to submission of the Data Access Request.

 You are able to apply for aggregate data from the BCPDR facilitated by the WHRI if:

  • You are a WHRI member, or under the supervision of WHRI member.
  • You are requesting data for provincial or sub-provincial (e.g. Health Authority) summary data that do not include personal information or potential identifiers.
  • You require the data for the purposes of research planning only.
  • You have contacted the WHRI Data Analyst prior to submission of the Data Access Request.

For more information on the WHRI BCPDR, including a list of available fields, please see our website: http://whri.org/bcpdr-data-request/

 

For any questions, further information or to apply, please contact the WHRI Data Analyst:

Emma Branch, 604-875-2424 ext.4796, emma.branch@cw.bc.ca